Wednesday's Test and Results

Well, today was a lot harder of a day than yesterday, but it is over with. We went in this morning around 8:30 and began some tests (not sedated), the nurse couldn't find what she was looking for on the screen, so called the best Doctor on the machine and he still couldn't find his aortic arch! Matt and I try to tell her that it takes like two 90 degree turns, so eventually they listened and referred to the CT scan that we had sent them a few months back and then understood why they couldn't see it! Dylon was a trooper the whole time, just laying on his back for over an hour while they did the echo cardiogram, he never complained!!!! After that we waited in the lobby for 2 hours until we got to see his cardiologist Dr.Slesnick. We really liked the doc, and he was very good at explaining the situation. He explained that Dylon has a Double Aortic Arch with an atretic left arch and a vascular ring around his esophagus! Meaning.....

The heart in this defect has four chambers and four valves.
The big blood vessel that moves blood to the body (aorta) is normally one tube with small branches that take blood to the arms, head and neck before going to the lower body.
In this defect, the main aorta tube splits into large left and right branches before becoming one tube to go to the lower body. This branching pattern can cause the swallowing tube (esophagus) or breathing tube (trachea) to be pinched (compressed). A child may have difficulty swallowing solid foods or sometimes have difficulty breathing.


Many times a child is several years old before this is discovered.


This is a rare heart defect and can be fixed by surgery.


So after we began to understand all of this we were told that surgery will definetly be needed and that the surgeon will explain this better on Monday! He said that this is very rare and that probably only done a handful of these surgeries! I hoped that the surgery would be done like with a scope or something, but he said that they will open him up through the chest.

I am still absorbing all of this, this scares the mess out of me, my baby having to go through this and then I look around at other kids that have a type of cancer or disease that isn't treatable and thank God that Dylon's is treatable.... I'm still believing in a miracle and I know that God will and has come through for us!

But on another note, we had a blast at the ball park last night, they have a train that goes around the park if a home run is hit by the Astro's and luckily two or three were hit. At the end of the game fireworks shot out from the train to celebrate the victory, and Dylon got upset because he thought the train was broken, he kept saying "they broke the train" it was cute!

So we are done with testing for the week, and now all we have to do is see the surgeon on Monday! I will try and post something then to let everyone know!

God Bless

*Please continue to keep Dylon, Matt, and Shelli in your prayers. I'm still trying to wrap my head around all of this, but it is so overwhelming. I can't even imagine what it must be like for the parents. Shelli is right. It is a blessing that they have been dealt with something that is treatable. I'm now praying for the doctor's that will care for Dylon that God will give them the knowledge and the skill to do what is best.